Tonya's Child with T-Cell Lymphoma

[blessed4hs]

My name is Tonya. My son just relapsed with T Cell Lymphoblastic Lymphoma after a 2 year coarse and remission for approx 4-5 months. It is quite aggressive. We allowed them to put him through one round of a very intense chemo to get him into remission, they want to do a second and then BMT. We feel more everyday that we cannot allow this and sense strongly that it will be too much for him. But we do not want our son to die!!

We are going to start Protocel. We have already done a Navarro Urine test which according to this shows a 53 and shows that the chemo helped us at least get down to a manageable level. He is having very hard time recovering for this, we can see it everyday. We feel God is leading us to NOT do the BMT and are not sure he would be able to tolerate one more dose of chemo. We are getting stronger and stronger in our resolution to avoid further chemo. Researching and prayer have helped immensely.

Looking to chat/ get feedback/encouragement from other parents on similar road.

Thanks
Tonya


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Editing Reason: Changed Title to add name as we are including names in "Tell Us Your Story Titles" due to the fact that there will eventually be many similar such cases on The Corner. Additionally, put in some paragraph lines just so it was easier to read post./elonna